Thirteen years and counting: maintaining remission with TSO for Crohn's and IBD-related (non erosive) arthritis

From Helminthic Therapy wiki
Jump to: navigation, search

Many failed medical treatments over two decades lead to surgery

Having Crohn’s disease since the age of 12, and IBDInflammatory bowel disease is a group of conditions affecting the gastrointestinal (GI) tract, particularly the colon and small intestine. The major types of IBD are Crohn's disease and ulcerative colitis (UC).-related arthritis since my mid 30s, I have tried all the medical routes and nothing worked to maintain remission. I had to have surgery to remove two thirds of my large intestine in my early 30s. 

I kept searching for a solution, and, finally, in 2004, I discovered the helminth research of Summers, Elliott and Weinstock. [1] The theory of the hygiene hypothesis and the need for biome reconstitution [2] made sense to me, as did the mechanisms that helminthsAn intestinal worm which grows large enough to be seen with the naked eye when mature but which is microscopic when administered in helminthic therapy. [https://en.wikipedia.org/wiki/Helminths Wikipedia:Helminths] use to temper and moderate the immune system. [3]

With a history of antibiotic use, prescribed to me as a child for sore throats, ear aches and colds, it made sense that my gut biome could be vulnerable to autoimmunity. It also made sense that the years of exposure to volatile organic compounds (VOCs), from the new and renovated homes that I lived in as child, could have overstimulated my immune system causing the perfect autoimmune storm. 

A flare threatens more surgery, and helminthsAn intestinal worm which grows large enough to be seen with the naked eye when mature but which is microscopic when administered in helminthic therapy. [https://en.wikipedia.org/wiki/Helminths Wikipedia:Helminths] join the therapy team

In 2005 and 2006, I was ill again, and needed to take 60 mg of prednisone and 250 mg of azathioprine daily, but these were not working, and the GIGastroenterology is the branch of medicine concerned with disorders of the digestive system which includes all the organs of the gastrointestinal (GI) tract (alimentary canal) from mouth to anus. Physicians practicing in this field of medicine are called gastroenterologists or GI specialists. doctor was pushing for more surgery to remove what remained of my colon. Fortunately, just in time, I found a company (now named Tanawisa [4]) that had recently begun selling pig whipwormA helminth with a tapering whiplike body that lives in the colon. In helminthic therapy, the microscopic eggs of either the human Trichuris trichiura (TTO) or pig Trichuris suis (TSO) are taken in a drink. eggs (Trichuris suisThe porcine (pig) whipworm used in helminthic therapy and taken as microscopic eggs (TSO) in a drink every two weeks. ova, or TSOthe ova (eggs) of the porcine (pig) whipworm, Trichuris suis). 

I took the research to a different GIGastroenterology is the branch of medicine concerned with disorders of the digestive system which includes all the organs of the gastrointestinal (GI) tract (alimentary canal) from mouth to anus. Physicians practicing in this field of medicine are called gastroenterologists or GI specialists. doctor who, fortuitously, was already following helminthic therapyThe reintroduction to the digestive tract of a controlled number of specially domesticated, mutualistic helminths (intestinal worms) in the form of microscopic eggs or larvae to reconstitute a depleted biome to treat and prevent chronic inflammation, autoimmune disease and other immunological disorders including allergy. research, and he agreed to monitor me while I tried helminthsAn intestinal worm which grows large enough to be seen with the naked eye when mature but which is microscopic when administered in helminthic therapy. [https://en.wikipedia.org/wiki/Helminths Wikipedia:Helminths]. His exact words were, “it’s worth a shot.” 

I started taking 500 TSOthe ova (eggs) of the porcine (pig) whipworm, Trichuris suis every fortnight in October 2006 and, at the 6 week mark, things started to change. The first noticeable improvement was my mood. Although, physically, I was feeling awful, mentally I felt a sense of calm and happiness, for no apparent reason. This uplifted mood change is known to those who use helminthsAn intestinal worm which grows large enough to be seen with the naked eye when mature but which is microscopic when administered in helminthic therapy. [https://en.wikipedia.org/wiki/Helminths Wikipedia:Helminths] as “The Bounce”. [5] 

The worms begin to work their magic

I was afraid to hope, but symptoms began to lessen, and I knew something positive was happening. My daily bowel movements reduced, stools began to firm up, less gas, less gut cramps and less pain. I kept a chart to measure symptom changes. 

By December 2006, I was feeling amazing, and I continued to improve steadily as I weaned off the prednisone, and then the azathioprine. I began going to the gym and lost all the prednisone weight and started to develop muscle. At the time, I was in university and my colleagues were amazed at my transformation. 

At different times, I have used the hookwormA helminth that lives in the small intestine. Necator americanus (NA) is the only hookworm species used in helminthic therapy. Its microscopic larvae are applied periodically to the skin., Necator americanusThe species of human hookworm used in helminthic therapy. Its microscopic larvae are applied periodically to the skin. [6] and the human whipwormA helminth with a tapering whiplike body that lives in the colon. In helminthic therapy, the microscopic eggs of either the human Trichuris trichiura (TTO) or pig Trichuris suis (TSO) are taken in a drink., Trichuris trichiuraThe human whipworm used in helminthic therapy and taken periodically as microscopic eggs (TTO) in a drink., [7] but have found the most gentle helminth for me has been the eggs of the porcine whipwormA helminth with a tapering whiplike body that lives in the colon. In helminthic therapy, the microscopic eggs of either the human Trichuris trichiura (TTO) or pig Trichuris suis (TSO) are taken in a drink., Trichuris suisThe porcine (pig) whipworm used in helminthic therapy and taken as microscopic eggs (TSO) in a drink every two weeks.. [8] 

HelminthsAn intestinal worm which grows large enough to be seen with the naked eye when mature but which is microscopic when administered in helminthic therapy. [https://en.wikipedia.org/wiki/Helminths Wikipedia:Helminths] saved my life and they continue to do their work maintaining my remission after more than 13 years.

By Tracy Cu, 2019.

SimpleHTLogo(18x18).gif Helminthic Therapy Wiki: documenting the science, management, experience and results of helminth replacement therapy.